"Lou Gehrig's Disease"
800.882.5764
24359 Northwestern Hwy., Suite 100
Southfield, MI  48075   Contact Us
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For 39 years, helping people with ALS (pALS), their families,
and caregivers to live life as fully as possible
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Meet Our Staff

Sue Burstein-Kahn
Executive Director
Sue has been the Executive Director of ALS of Michigan, Lou Gehrig's Disease, since February 1999. She began her association with the organization in July 1998, first serving as a member of the Board of Directors. Sue has a personal interest in helping pALS and their families as they live with ALS. Sue's dad, Al Burstein, lost his battle with ALS in September 1987. Even though Sue has had personal experience with ALS, she has gained extensive experience and insight into this devastating disease through her years at ALS of Michigan ."It has been my honor to have been able to work with so many pALS and families over the years. I am always amazed at the grace they display as they live everyday with ALS", Burstein-Kahn said.Previously, Sue was the Executive Director for Kenny Foundation, an organization that provided services to people with disabilities. She is also past president of Community Health Charities of Michigan. Sue is a graduate of Eastern Michigan University and pursued additional post-graduate education at Walsh College.

Lisa G. Bardach, MS CCC-SLP
Speech-Language Pathologist
Lisa is a licensed and certified Speech-Language Pathologist who is nationally recognized for her expertise in Augmentative/Alternative Communication (AAC), specifically in helping people with severe physical challenges gain access to communication technology. Lisa has been a part of ALS of Michigan since July of 2000.She developed and implemented the AAC Center, a regional clinic to provide AAC and Assistive Technology services to pALS throughout Michigan. She is dedicated to ensuring that pALS have a way to communicate throughout the course of the disease, helping them to implement low tech and high tech methods of communication. She provides evaluation and training for pALS in need of communication, speech generating devices, and computer access as well as telephone technology. Lisa holds a Master's Degree in Speech-Language Pathology from the University of Wisconsin-Madison. Lisa is also an adjunct faculty member of the State University of New York at Buffalo.

Joanne K Berry, MPA
Development Director
Joanne's primary role is to raise funds to support the many important programs and services that ALS of Michigan provides for our pALS and their families. Since 2001, she has relished the opportunity to work closely with our executive director, staff, volunteers, sponsors, and donors on a variety of fundraising initiatives. These include the very popular annual events such as the Walk 'n Roll for ALS, Lou Gehrig Day at Comerica Park, and Rock 'n Roll the Dice, as well as numerous Friends & Family third party events like golf outings, dinner dances, and euchre tournaments. Joanne possesses a bachelor's of science degree from Michigan State University and a master's degree in public administration from Oakland University.

Nancy Farison, LMSW, ACSW
Social Worker/Patient Services
Nancy has been with ALS of Michigan since May 2013 as the social worker and patient services coordinator for the Mid-Michigan ALS community. With an office and medical equipment loan closet located in Midland, Nancy provides pALS and families in this region with important resources and also facilitates monthly caregiver and regular support groups. In addition, she maintains a private practice and teaches as an adjunct professor for Michigan State University in the graduate social work program at Saginaw Valley State University. Nancy received a BA degree in Psychology and Sociology from Anderson University in 1978, a BSW degree from Saginaw Valley University in 1986, and a clinical MSW degree with a cognate in Aging in 1994 from Michigan State University.

Judi Fortuna
Patient Services Coordinator
Judi has been with ALS of Michigan since November of 2001. During this time she has assisted pALS and their families in utilizing services provided through the organization. She is instrumental in collaborating in the development of conferences, workshops and seminars to help educate families, home care agencies and other organizations about the disease.Judi assists families in locating and utilizing the Respite Care Assistance Program and follows up on a monthly basis to ensure that pALS and their families are receiving quality homecare services."For our families, dealing with a terminal illness is devastating, but knowing that I have helped in some small way to ease the burden is very rewarding.It is such an honor to be a part of this team."

Mary Hansen, LMSW, ACSW
Social Worker/Patient Services Coordinator
Mary joined our team in October 2016 with extensive experience as a social worker, mostly in the medical realm. Her role at ALS of Michigan is centered on helping families obtain the resources they need to effectively deal with their medical condition. She also provides emotional support to help patients and their loved ones cope with the stressors that come with ALS. Mary says that she is "privileged to be able to provide her passion and skills to the ALS community." She graduated from the University of Michigan with a Master's of Social Work degree. She is a Licensed Master's Level Social Worker (LMSW) and also holds the ACSW credential.

Linda Kern, LMSW
Social Worker/Patient Services Coordinator
Linda joined the ALS of Michigan team in the fall of 2012. As a social worker and patient services coordinator for ALS of Michigan, Linda's role includes assisting with calls and emails for support, information, and resources along with our loan closet, facilitating the Sterling Heights support group, participating in local events, and representing ALS of Michigan at the Henry Ford ALS Clinic. Linda graduated from Wayne State University with both a bachelor's and Master's degrees in social work. She has 18 years of experience as a social worker, with a focus on the medical field. "I feel fortunate to be working with ALS of Michigan, so that I can be there for people as they cope with the many changes associated with this disease."

pALS

From left to right: Linda Kern, Judi Fortuna, Lisa Bardach, Nancy Farison, Joanne Berry, Sue Burstein-Kahn, and Mary Hansen

Contact Information

24359 Northwestern Hwy., Suite 100
Southfield, MI 48075
Fax: 248-354-6440

FOR MORE INFORMATION CALL: 800-882-5764

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