About ALS of Michigan

We hope you find this website filled with useful information about our Organization and ALS. Our mission is to help those dealing with ALS find answers to their questions and services for their needs.

About ALS of Michigan

ALS of Michigan is a voluntary not-for-profit organization, solely dedicated to the fight against ALS. We serve pALS (people with ALS) and their families in the state of Michigan through a variety of programs. Some of our programs include Information, Referrals and Resource Guides, Workshops & Seminars, Equipment Loan Closet, Augmentative & Alternative Communication Center, Home Visits, Peer Counseling, Support Groups, and Respite Care Services (in certain areas).

ALS Clinics in Michigan

There are many qualified neurologists throughout Michigan who treat pALS on a regular basis. In fact, Michigan is extremely fortunate to have some of the finest ALS physicians and treatment centers anywhere. These centers provide a multidisciplinary approach to caring for pALS, using the latest advancements in the treatment of ALS. Please contact these clinics for more information about specific services, or call us at 800-882-5764 for more information:

Harry J. Hoenselaar ALS Clinic
Department of Neurology
2799 West Grand Boulevard, K-11
Detroit, MI 48202-2689
(313) 916-2835 - Office
(313) 916-3014 - Fax
alsclinic@neuro.hfh.edu

Detroit ALS Medical Center
Wayne State University - University Health Center Neurology
4201 St. Antoine
Detroit, MI 48201
(313) 745-6124 Office
smasse@med.wayne.edu

Motor Neuron Disease – ALS Clinic
A. Alfred Taubman Health Care Center
1500 East Medical Center Drive
Floor 1, Room 1324
Ann Arbor, MI 48109-5322
(734) 936-9020 - Office
(734) 615-4991 - Fax

Mary Free Bed Hospital
350 Lafayette Street
Grand Rapids, Michigan
(800) 528-8989 - Office
alsnurses@maryfreebed.com

ALS of Michigan Board of Directors

Our organization is governed in principle and policy by a dedicated volunteer board of directors. These individuals, comprised of family members of people with ALS, business and community leaders, health professionals, and members of the general public, provide guidance and oversight to the organization in meeting its mission.

In addition to our board of directors the organization is managed on a day-to-day basis by an excellent professional staff. They are responsible for the development, implementation and evaluation of the critically needed programs that ALS of Michigan offers to the ALS community.  These dedicated individuals can be reached at the e-mail addresses listed.

ALS of Michigan Staff

(Click on the individual's name to contact them by email)

• Sue Burstein-Kahn, Executive Director
• Joanne K. Berry, MPA, Development Director
• Linda Kern, LMSW, Director of Patient Services
• Lisa Bardach, CCC-SLP, Augmentative Communication Services
• Judi Fortuna, Patient Services Coordinator - Respite Care
• Samantha Rinella, LLMSW, Patient Services Coordinator
• Send a general email