"Lou Gehrig's Disease"
800.882.5764
24359 Northwestern Hwy., Suite 100
Southfield, MI  48075   Contact Us
Click here to Donate Now!
For 40 years, helping people with ALS (pALS), their families,
and caregivers to live life as fully as possible
Click here to Donate Now!

Welcome to ALS of Michigan

Whether you are a newly diagnosed pALS (person with ALS), someone who has been living with ALS for a while, a family member, health professional, or just interested in information about ALS, welcome to our website.

For the past 40 years, ALS of Michigan has worked diligently to fulfill its mission of helping people with ALS, their families and caregivers live life as fully as possible. We take our obligations to Michigan's ALS community very seriously and are dedicated to being here for our pALS and families for as long as needed.

We want you (our pALS and families) to know that your needs are of primary importance to us and you will be given individual attention from our trained professional staff that includes three (3) master level, licensed social workers.

Our site is meant to give you some basic insight into living with ALS, information about the disease, as well as, workshops, seminars, and fundraising events that we hold.

We hope that you find the information on this site useful, and if you need more assistance, please do not hesitate to call our office at 800-882-5764. You can also contact individual staff members by phone or by email by clicking here.

Or, you can request an information packet by clicking here.

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Stay Connected With Us

Sign up here to receive our Newsletter filled with information about ALS, Research, and our organization by clicking here.

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pALS

Celebrate ALS Awareness Month in May!

Available Online From

Monday, April 16 to Friday, May 4, 2018

Click here to learn how to raise your bids for our pALS!

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Lou Gehrig Day Logo

Join us for our 13th Annual Lou Gehrig Day at Comerica Park

Saturday, June 9, 2018

Game Time 4:10 pm

Hear our Tigers roar as they take on the Cleveland Indians!


Click here to see how you can help us hit a home run!


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Announcing our 18th Annual Walk 'n Roll for ALS

Our 2018 dates and walk locations are confirmed!

  • Saturday, September 15 - Lansing at Hawk Island Park
  • Sunday, September 23 - Midland at Emerson Park
  • Sunday, September 30 - Milford at Kensington Metropark
  • Sunday, September 30 - Shelby Township at Stony Creek Metropark
  • Please note that we are not hosting a Lake Erie Walk in 2018.

    Click here to learn more about walking 'n rolling for ALS!

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    Workshops and Conferences


    Find out more about these Workshops here!

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    Augmentative Communication Device Users:

    A research team at Penn State is interested in the experiences of persons with ALS who have received an augmentative/alternative communication (AAC) device. They are especially interested in identifying ways to support good AAC assessment and intervention experiences for persons with ALS. You can find or more information at the ALS and AAC project at Penn State (by clicking http://aac.psu.edu/?p=2885), or by emailing Felicia Giambalvo at psuAACresearch1@gmail.com.

    Lisa Bardach, our speech-language pathologist, has been working with this research team in developing their survey. Please feel free to contact Lisa for more information as well, at Lisa@alsofmi.org or 248.354.6100 x227.

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    pALS

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    CLINICAL TRIALS

    Looking for information on Research Trials? Here are two resources where you can find the latest information on current research being conducted.

    Read more here at (https://clinicaltrials.gov/ct2/results?term=ALS&Search=Search).
    Read more here at (http://alsconsortium.org/browse.php).

    pALS Stephen Goutman, MD, Director of the University of Michigan ALS Clinic gives a research update to pALS and Families - July 2016

    pALS Eyegaze Workshop 8-25-26 Part 1

    pALS Eyegaze Workshop 8-25-26 Part 2

    pALS Eyegaze Workshop 8-25-26 Part 3

    pALS Eyegaze Workshop 8-25-26 Part 4

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    For Our pALS and Families

    FRIENDS AND FAMILY EVENTS

    • Jean's Dragonflies Recipe Cookbook to Benefit ALS of Michigan - Submissions Requested!
    • 15th Annual JFK K of C Polish Dinner Fundraiser, Sunday, January 21, 2018
    • 13th Annual Dick Jolly Memorial Euchre Tournament, Saturday, February 24, 2018
    • 12th Annual Kathy's Kids Dinner Dance in Honor of Kathleen Martinez, Kristine Hall, Cologera Nicosia & Jean Deldin, Saturday, March 3, 2018
    • Beyond Reality: The Magic & Wonders of Dale Kirsch, Saturday, March 24, 2018
    • Jean's Dragonflies 2nd Annual ALS Euchre Tournament, Sunday, April 29, 2018
    • 14th Annual Jim Rivett Memorial Charity Golf Tournament, Saturday, June 2,
    • 3rd Annual ALS Block Party in Memory of Dave Maccani, June 2018, date TBD
    • 11th Annual Pointe Academy Dance Center Burt Meisel Holiday Performance, December 2018, date TBD
    • Create Your Own Event!
    • Click here for more information on these events.

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    ALS IN THE NEWS
    Ask the Professional - Voice Banking
    Q: I heard something about voice banking and I want to save my voice on the computer in case I lose my speech. How do I go about doing this?
    A: This is a question I get frequently. First, let’s differentiate between voice banking and message banking. Based on a model developed by John Costello, MA CCC-SLP at Children’s Hospital Boston (CHB), these are two separate ideas.
    Read more »
    ESPECIALLY FOR VETERANS WITH ALS
    We are pleased to announce these new rules from the Department of Veterans Affairs. All veterans with ALS who have served at least 90 days or more of continuous service now have presumptive eligibility.
    Read more »
    All ALS of Michigan event pictures can now be found on Flickr at www.flickr.com/photos/alsofmichigan

    Donate with Confidence


    Are you concerned about how your generous contributions will be used?  Of course you are!

    100% of your contributions stay right here in Michigan helping Michigan pALS and their families.

    Click here now for secure Online Giving: Click here to Donate Now!
    Our services to families, caregivers and patients with ALS (pALS) include support groups, respite care, augmentative and alternative communication, seminars and workshops, loan closet of durable medical equipment, home visits, patient and public information, and much more! -- We also support research into the cause, cure and treatment of ALS.
    ALS of Michigan is not associated with
    ALSA - The ALS Association
    or with the ALS Association - Michigan Chapter
    Member of Community Health Charities
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    ALS GuideStar Exchange Platinum